Couple describe the agony of losing two children just weeks apart to a rare genetic disease – and insist the painful journey made them better parents

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A couple is still coping with the tragic deaths of their two children which they say made them better parents.

Ben and Allison Gauvin lost their son Beckett, three, and daughter Clementine, two, just eight weeks apart in 2014 due to the same rare genetic disorder. 

They suffered from pyruvate carboxylase deficiency, a rare disease causing a buildup of acid in the blood that induces fatigue, difficulty breathing and progressive brain delays, which kills most infants within the first six months.

Now the couple from Connecticut has said their experience has taught them to love differently and parent their two children, Julia, nine, and Wilbur, three.

1e6c33839880d37cd605b414472fe346 Couple describe the agony of losing two children just weeks apart to a rare genetic disease - and insist the painful journey made them better parents

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