A couple who tragically have two young daughters suffering from a devastating, rare disease nicknamed ‘childhood Alzheimer’s’ is working with research agencies and doctors on a campaign to save lives.
Pam and Chris Andrews were devastated when they were told that their beautiful daughter Belle, now seven, was suffering from the disease which affects just 200 people in America and 500 kids worldwide, killing a majority between 10 and 20 years old.
As it is a very rare, genetic disease, there was a one in four chances that her toddler Abby would have it too, but Pam and her husband Chris refused to believe it could happen again.
Tragically, three weeks after Belle was diagnosed, the couple from Austin, Texas were told Abby was also suffering from Niemann-Pick Type C1 (NPC1) which is fatal.
‘Every Christmas we have together we value so much. Christmas is incredibly special for us and we make the most of every single moment. We don’t know what the future is going to hold for us so we are thankful for every memory we have with our girls,’ Pam says.