Girl, 9, with an oversized brain which has left her unable to walk or talk, has mysterious condition so rare it hasn’t got a name and could be called after her

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A nine-year-old girl with an abnormally large brain and head has baffled doctors who say her condition is so rare they are not able to identify it. 

Katie Renfroe cannot walk or talk and suffers with seizures and needed brain surgery at just nine months old. 

She was initially diagnosed with growth development disorder megalencephaly which causes overgrowth of the brain but medical experts later changed their minds.

Mother Angie, from Florida, has now been told the unknown condition could be named after Katie. 

She said: ‘Katie is very rare – she has not been diagnosed with anything and they’re still trying to find out what she has.

724bab3fe30ee9c9987d4bb816524835 Girl, 9, with an oversized brain which has left her unable to walk or talk, has mysterious condition so rare it hasn't got a name and could be called after her

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